rare diseases

Health

Sisters Fighting for Life-Changing NHS Treatment Take Their Battle to Parliament

Two sisters living with a rare, life-limiting condition are petitioning Parliament for better access to essential NHS treatments. Their journey highlights the ongoing struggle for equitable healthcare...

Sep 22, 2026 3 min read

Health

A Race Against Time: The Devastating Barriers to Lifesaving Treatment for Infants

For the families of children with rare genetic conditions, medical breakthroughs offer a glimmer of hope that is often extinguished by bureaucratic hurdles and staggering costs. This is the story of a...

Jul 22, 2026 5 min read

Health

Urgent Plea: Parents Race Against Time as Young Son Battles Rare Childhood Dementia

A family is urgently campaigning for greater awareness and research funding after their five-year-old son was diagnosed with a devastating, rare form of childhood dementia. The heartbreaking reality u...

Jan 31, 2026 3 min read